PAIN...LIVE OR LET RULE

I have been in pain for the past two weeks. I had difficulty sitting or standing for a long time. I could lay down for a while but it had to be flat on my back....and that reminds me of what the Neurologist stated in my evaluation. She said that I have issues sitting, standing, walking for any period of time but she can lay flat on her back! My husband laughed at that and said you are not working that way!!!!!

Anyway, I have taken pain medications and they still didn't help. All they did was take the edge off.  I even took warm bathes which are not good for me.

But they did help with the pain some. The pain kept me down for several days. Then yesterday it rained and that helped relieve some of the pain.  Told my husband that I could predict rain with these hips! LOL!

People don't believe that pain comes with MS but I am here to tell you that I have had more pain than they would believe.  And I can tell you they don't believe me. But that doesn't take my pain away. You have to make a decision when you have pain....whether to live your life or let it rule you life?!

HERE'S MY MS STORY!

Valorie Diamond, Columnist, MSnewsChannel.com

I was at work one day at Kmart unloading a truck when my face starting going numb. It was odd but I didn't think anything of it as it had happened before and always went away within the hour.  Well this time it didn't and started in my left hand.  I thought that maybe I had a pinched nerve somewhere. So made a doctor appointment to see my PCP.

He sent me to a Neurologist that decided to do a spinal tap. Well that wasn't a pleasant experience as he hit my spinal nerve! Have you ever tried to lay still when something like a lightening bolt goes through your body unexpectedly? I managed to do it but the nurse's and my mom's hand will probably never be the same.! He also did an MRI. So when all was done I went back to get the results. My mom went with me for support as I wasn't married at that time. Well, let me tell you I will never go to a doctor again that just started practicing!! He told me it was all in my head! No truer words were ever spoken.  But he said that it was probably my migraines that were causing it and that I was just depressed! And at that time I hadn't started with the depression but I did when I walked out of his office.

Do Not Judge Me and My Multiple Sclerosis!

Valorie Diamond, Columnist, MSnewsChannel.com    

Again the other day I was told "You don't look disabled"....What? 

Seriously you went there? Can you see diabetes, mental illness ,someone in pain, Fibromyalgia? Come on!!!  

Why would you want to judge someone that you have no idea what they go through each and everyday?

It takes everything I am to get myself out of bed because of the fatigue. And you think you know fatigue...not! You can have a great nights sleep but still feel as if you never slept and have no energy to do anything.  It is something I fight everyday and when I make it out of bed and function to the best of my ability that for me is a great day. For you it is easy.  Not so much for a person with MS.

Can you see my cognitive issues? No. Not unless you talk to me on a day that I cannot find the words to describe something or repeat things over and over because I cannot remember that I already said that.

I have developed high blood pressure and it appears to be a RARE side effect of the Gilenya which I'm taking for my Multiple Sclerosis

I have developed high blood pressure and it appears to be a RARE side effect of the Gilenya which I'm taking for my Multiple Sclerosis

by Valorie Diamond, Columnist, MSnewsChannel.com

This is my 1st column! my next one will be longer and better!

Just dealing with a lot and trying to keep myself on an even keel. I have developed high blood pressure and it appears to be a RARE side effect of the Gilenya. 

I have also been dealing with TMJ and trying to get a mouth guard....but who has $2000.00 to just drop in someone elses hands?! And I am suppose to have two of them? 

And just yesterday I found out that I am close to having diabetes. 

So everything in my body right now is going nuts. And we found out that our insurance is canceled because hubby is still on W/C awaiting 2nd surgery. 

So as you can seel I have been kinda pre-occuppied. 


HugZ and hope all it swell with you and the Angels!