Saturday, June 8, 2013

Do Not Judge Me and My Multiple Sclerosis!

Valorie Diamond, Columnist, MSnewsChannel.com    

Again the other day I was told "You don't look disabled"....What? 
Seriously you went there? Can you see diabetes, mental illness ,someone in pain, Fibromyalgia? Come on!!!  

Why would you want to judge someone that you have no idea what they go through each and everyday?

It takes everything I am to get myself out of bed because of the fatigue. And you think you know fatigue...not! You can have a great nights sleep but still feel as if you never slept and have no energy to do anything.  It is something I fight everyday and when I make it out of bed and function to the best of my ability that for me is a great day. For you it is easy.  Not so much for a person with MS.

Can you see my cognitive issues? No. Not unless you talk to me on a day that I cannot find the words to describe something or repeat things over and over because I cannot remember that I already said that.

Thursday, June 6, 2013

I have developed high blood pressure and it appears to be a RARE side effect of the Gilenya which I'm taking for my Multiple Sclerosis

I have developed high blood pressure and it appears to be a RARE side effect of the Gilenya which I'm taking for my Multiple Sclerosis

by Valorie Diamond, Columnist, MSnewsChannel.com


This is my 1st column! my next one will be longer and better!

Just dealing with a lot and trying to keep myself on an even keel. I have developed high blood pressure and it appears to be a RARE side effect of the Gilenya. 

I have also been dealing with TMJ and trying to get a mouth guard....but who has $2000.00 to just drop in someone elses hands?! And I am suppose to have two of them? 

And just yesterday I found out that I am close to having diabetes. 

So everything in my body right now is going nuts. And we found out that our insurance is canceled because hubby is still on W/C awaiting 2nd surgery. 

So as you can seel I have been kinda pre-occuppied. 


HugZ and hope all it swell with you and the Angels!