Valorie Diamond, Columnist, MSnewsChannel.com
was at work one day at Kmart unloading a truck when my face starting
going numb. It was odd but I didn't think anything of it as it had
happened before and always went away within the hour. Well this time it
didn't and started in my left hand. I thought that maybe I had a
pinched nerve somewhere. So made a doctor appointment to see my PCP.
sent me to a Neurologist that decided to do a spinal tap. Well that
wasn't a pleasant experience as he hit my spinal nerve! Have you ever
tried to lay still when something like a lightening bolt goes through
your body unexpectedly? I managed to do it but the nurse's and my mom's hand will probably never be the same.! He
also did an MRI. So when all was done I went back to get the results.
My mom went with me for support as I wasn't married at that time. Well,
let me tell you I will never go to a doctor again that just started
practicing!! He told me it was all in my head! No truer words were ever
spoken. But he said that it was probably my migraines that were causing
it and that I was just depressed! And at that time I hadn't started
with the depression but I did when I walked out of his office.
numbness remained and I just lived with it. In the meantime I married
and moved to Louisiana. There I was having major fatigue after work and I
worked at a desk as a bookkeeper. Then my left arm started getting
heavy and I was having pain. So my doctor sent me to a Rheumatologist.
Well she said that I had Fibromyalgia but that didn't explain my heavy
arm so she sent me to a Neurologist there. They did another MRI as it
had been about 3 yrs since my last one. When I went back for the results
he said there was nothing and sent me back to the Rheumatologist. They
just bounced me back and forth.
Well I took an new
position with the company and moved to Texas. I did great for awhile and
then my left arm went heavy again and I was dragging my foot. So off
to a new Neurologist I went. He said he didn't think it was MS from all
the tests he did but was going to send off for my MRI from the previous
year. He wanted to wait on a new MRI til after he saw the other. Well
when he got it he called me in and sat me down in his office and told me
that I had MS. He showed me the MRI from the year before and that they
could have told me then. He was really mad for what they did to me.
told me that he normally doesn't recommend that his patience go out and
read everything there is on MS because they think everything they read
will happen to them. But said he knew that I needed to know all about
this MS and that I will not over react. When my husband and I left his
office that February in 1997 I was relieved that I finally knew what was
My husband and I went to Walmart after we
left his office and I told him that I didn't know when or what this
crazy thing was going to do to me. That if he wasn't built to deal with
someone with a chronic disease that he could leave now and I would
understand. Well he told me that he was going to stick around and that I
wasn't getting rid of him that easily. He said if I ever end up in a
wheel-chair he would push me around and pop wheelies! LOL! And his dream
came true a couple of times during my hip replacements and when I
couldn't put any weight on my feet!
I had a great
Neurologist for 13 yrs that talked to me about everything. He would fuss
when I stopped therapy but understood. He fussed at me when I was
having major problems at 2am and didn't call him until the office was
opened. Since then I have moved away and have gone through three
Neurologists. One that wanted to re-diagnose me! Another that thinks
pain isn't associated with MS ( and he calls himself an MS Specialist).
The latter kept telling me that I was imagining my itching too!
of right now I guess I don't have a Neurologist, but I have a PCP that
keeps up with the latest news on MS. He has three patients that have MS
in different stages. But he listens and will work me right in if I am
having issues. I miss my Neurologist that I had for 13! But for now my
PCP will do.
I have done my research and know what MIGHT come.
Have had issues with my legs and feet and don't mind that I might end up
in a wheel-chair. I can have a life no matter if I am standing or
sitting. Will adapt to whatever this MonSter sends my way. And I will
have my husband and children there to help!